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  • June 1, 2011 at 1:59 pm in reply to: Gout Cures – What really works from experience…. #11586
    GHLF
    Participant

    The?Global?Healthy?Living?Foundation, a patient advocacy group that seeks to help people with chronic illnesses, is speaking before an FDA hearing on June 21st and is looking for a patient with?gout?to testify about his or her experiences.?

    We know the suffering and struggle over access to medications or care that?gout?patients endure, and we are speaking from the advocacy side to the FDA. However, your message, and your words, should be represented. Before the members of the Arthritis Advisory Committee treat any subject concerning?gout?or vote on approving any new measures or drugs, they must understand.?

    If you live in DC/Maryland metro area and are willing to share your experiences?livingwith?gout?for a very short presentation (3-5 minutes) before a committee on June 21st, please get in touch with us, emailing me at [email protected]ghlf.org?or calling (845) 348-0400 for more information. Please contact us as soon as possible because the names for speakers must be confirmed by May 28th.?

    Thank you so much.?

    All best,?
    The?Global?Healthy?Living?Foundation

    June 1, 2011 at 1:59 pm in reply to: Gout and Crohn’s Disease #4106
    GHLF
    Participant

    The?Global?Healthy?Living?Foundation, a patient advocacy group that seeks to help people with chronic illnesses, is speaking before an FDA hearing on June 21st and is looking for a patient with?gout?to testify about his or her experiences.?

    We know the suffering and struggle over access to medications or care that?gout?patients endure, and we are speaking from the advocacy side to the FDA. However, your message, and your words, should be represented. Before the members of the Arthritis Advisory Committee treat any subject concerning?gout?or vote on approving any new measures or drugs, they must understand.?

    If you live in DC/Maryland metro area and are willing to share your experiences?living?with?gout?for a very short presentation (3-5 minutes) before a committee on June 21st, please get in touch with us, emailing me at [email protected]ghlf.org?or calling (845) 348-0400 for more information. Please contact us as soon as possible because the names for speakers must be confirmed by May 28th.?

    Thank you so much.?

    All best,?
    The?Global?Healthy?Living?Foundation

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